Create a spider number for your relative

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Do you consent to the implementation of this interoperability and therefore to the sharing of data concerning your relative(s) with intellectual disabilities registered in GenIDA between the different ILIAD registries?

Yes

If yes, do you agree to the generation of a Spider number for this (these) relative(s) registered in GenIDA?

Yes

To do this, we need the family name, first name and date of birth of your relative(s) with an intellectual disability registered in GenIDA.

Family name

First name(s)

E-mail address (the one used in GenIDA or to receive this e-mail)

Please enter a valid email address (example@domain.com).

I agree to the processing of my personal data by GenIDA. Learn more

What is his/her date of birth?

The following survey questionnaire is designed and distributed by GenIDA

PURPOSE OF DATA PROCESSING

Objectives

The data processing is aimed at la création de numéro SPIDER pour l'interopérabilité de la base de données GenIDA avec les registres dans ILIAD

Legal Basis

Nous récoltons vos données sur la base du consentement donné dans ce formulaire à GenIDA de créer un numéro SPIDER pour votre proche atteint, ainsi que sur la base du consentement préalable que vous avez donné au moment de votre inscription sur le site de GenIDA.

PROCESSED DATA

Type of processes carried out

Collection, recording, organization, preservation, adaptation, modification, extraction, consultation, use, communication by transmission, dissemination or any other form of provision, alignment or interconnection, locking, erasure or destruction.

Categories of processed data

Données d'identification du proche atteint (nom, prénom(s) & date de naissance); coordonnées du parent/aidant participant à GenIDA (adresse email).

Data Source

These informations are directly collected from the person answering the questionnaire.

INDIVIDUALS CONCERNED

Data processing concerns natural and legal persons answering the questionnaire.

DATA RECIPIENTS

Categories of recipients

participants consentant au projet GenIDA

DATA RETENTION PERIOD

24 months

SECURITY

We continuously protect your information.

For this, we implement all necessary technical and organizational security measures to protect your data, against any unauthorized access, modification, loss, disclosure, alteration, or destruction.

These measures include:

Sensibilisation des équipes au RGPD

YOUR RIGHTS OVER YOUR DATA

The applicable regulation on data protection gives you specific rights that you can exercise, at any time and free of charge, to control the use we make of your data.

Right to access and copy your personal data as long as this request does not contradict trade secrets, confidentiality, or correspondence secrecy.
Right to rectification of personal data that would be incorrect, outdated or incomplete.
Right to request erasure ("right to be forgotten") of your personal data which would not be essential for the proper functioning of our services.
Right to limit your personal data that allows to photograph the use of your data in case of dispute on the legitimacy of a treatment.
Right to portability of your data which allows you to retrieve part of your personal data in order to store or transmit them easily from one information system to another.
Right to give directives on the fate of your data in case of death through you, a trusted third party, or a rights holder.

For a request to be considered, it is imperative that it is made directly by you at the following address genida@igbmc.fr. Any request that is not made in this way cannot be processed.

Requests cannot come from anyone other than you. Therefore, we may ask you for proof of identity if there is any doubt about the identity of the requester.

We will respond to your request as soon as possible, within three months of receiving it, in case the request is technically complex or if we receive many requests at the same time.

Please note that we can always refuse to respond to any excessive or unfounded request, particularly with regard to its repetitive nature.

Exercising your rights

The data protection officer is your contact for any request to exercise your rights on this treatment.

Contact the officer by electronic means: genida@igbmc.fr

Complaint (grievance) to the CNIL

You can contact the French supervisory authority for data protection (the "National Commission for Information Technology and Liberties" or "CNIL") at any time at the following address: Complaints service of the CNIL, 3 Place de Fontenoy - TSA 80751, 75334 Paris Cedex 07 or by phone at 01.53.73.22.22.

DATA TRANSFER OUTSIDE OF THE EUROPEAN UNION

Nous ne transférons jamais vos données en dehors de l’Union Européenne

AUTOMATED DECISION MAKING

Non-automated decision making

Nous mettons tout en œuvre pour protéger vos données.